Tuesday, November 15, 2016

Hey, School District!

Last night our district held a school board meeting. A segment of the meeting allows audience members to address the school board. This is what I told our school board.
Good evening 
I am here to talk to you about inclusive education at the preschool level. 
My husband and I have four children. My oldest son is in middle school, my oldest daughter is in elementary school, and my 3 year old is in Preschool at a different Elementary. My youngest is not yet in school.

Anna, my 3 year old, is blessed with an extra chromosome. She has Down syndrome and she is a fire cracker. She is in the developmental preschool program at   elementary. Her teacher really shows so much love for the kids and we know she is in good hands while she is at school. Anna lights up when she sees her bus and is excited to go to school. 
When I dropped her off at school a few weeks ago, I watched as all the big kids flooded off the buses and onto the playground. Then the kids on the little buses were escorted to their classroom. I know there is an age difference between my daughter and the kids on the playground, but what a missed opportunity to have kids together at something that is just such a normal, everyday thing as playing on the play ground before school.

This event caused me to look at Anna’s schooling differently. 
It is one of the reasons I am here tonight.

When Anna was too young for school and both of my older kids were in the same elementary school, one of the kids came home from school and asked me, “Where are all the kids with Down syndrome, mommy? Will Anna be allowed at my school?”

I didn’t have an answer.

I volunteered and went to events at the kid’s school. I looked around and there was not one child like my three year old in the school. We started to seek out local groups that we could take the kids to that involved kids their own age who have Down syndrome. I needed my kids to know that Anna was ok. Finding these groups was really good for my kids. They went to one event and watched movies with some kids. They have a lot of the same interests, likes and dislikes. They are all just kids.

This is our normal, but it shouldn’t be the abnormal. I shouldn’t have had to seek out situations for my kids to be around kids who happened to be blessed with an extra chromosome.

I want my kids to be in a world that welcomes them and I want them to be in a world that allows them to participate with the rest of the world. I want this world for all four of my kids.

I want both my daughters to go to school with the kids down the street. I want my kids to be in the same school if possible. I plan for a world that encourages all four of my kids to go to college and the opportunity to fully participate in the community.

I want my kids to learn to take care of themselves, to reach for the stars and to stand up for others.

Tonight I am giving you a copy of the recent joint Policy statement on inclusion of children with disabilities in early childhood programs. by the US Department of Education and the US Department of Health and Human Services released in September of 2015.

The policy statement outlines that districts should “Strongly communicate inclusion as a shared responsibility and a top priority, and demonstrate a commitment to inclusion through policy changes and appropriate resource allocation at all levels.”

Meaningful inclusive education needs to happen.

I am going to read you a segment from the IDEA’s Least Restrictive Environment Provisions. I know I am likely preaching to the chior, but I want you to think about these words:
(IDEA’s LRE provisions are found at §§300.114 through 300.117.) Each public agency must ensure that—
(i) To the maximum extent appropriate, children with disabilities, including children in public or private institutions or other care facilities, are educated with children who are nondisabled; and
(ii) Special classes, separate schooling, or other removal of children with disabilities from the regular educational environment occurs only if the nature or severity of the disability is such that education in regular classes with the use of supplementary aids and services cannot be achieved satisfactorily. [§300.114(a]

As a district, we can make a difference and we need to look at what we can do together to bring this population into the classrooms with other kids.

A recent Dutch study published in June of this year in the Journal of Policy and Practice in Intellectual Disabilities outlines that people with Down syndrome with lower IQs in inclusive settings did better than their counterparts with higher IQs in segregated settings. The data shows that being part of the classroom with typical kids, kids did better.

One of the barriers to inclusion is the fear of a negative impact on typical kids. What’s really cool is the data shows this is not the case. Many studies show that an inclusive education classroom actually benefits all students.

A 2001 study states:
“In the area of academic progress, Waldron, Cole, and Majd (2001) report that more students without disabilities made comparable or greater gains in math and reading when taught in inclusive settings versus traditional classrooms where no students with disabilities are included.”

A 1998 study states “Further evidence for the positive effects of inclusion on students without disabilities is reported by McGregor and Vogelsberg (1998). They found:
  • inclusion does not compromise general education students’ outcomes 
  • typical peers benefit from involvement and relationships with students who have disabilities in inclusive settings, and 
  • the presence of students with disabilities in general education classrooms leads to new learning opportunities for typical students.

Inclusive education is a huge benefit to all students, not just the students receiving special educational services.

Saturday, November 5, 2016

The short bus

My little girl started developmental preschool. She takes the little bus. The bus stops at the top of our driveway and she happily climbs on to go to school.

I have my misgivings about school. I like her teachers, I like the care and respect everyone has for us, but I wish she had peer models.

I dropped her off at school once this year and left very upset.

First, I watched as all the big buses came. The kids came pouring out the doors of the buses onto the playground. We were trying to get Anna to her class and were turned away at the door because they weren't ready for her. I asked if she should go to the play ground and I was told, "no!"

We were told to wait by the bus drop off, so we walked back to the front of the school and watched the kids run past us to the play ground. After all the big buses emptied and left, the short buses pulled up. It was like a dance, one group left and the next group came on stage. However, none of the kids got off. They sat on the bus and waited for the helpers. Then the kids were escorted off to their separate classes.

It took everything I had not to start crying for my little girl right there.

My little girl, who I had been asking to be around typical kids missed another opportunity. I didn't see one child get off the short bus and head to the play ground with the other kids. Not even the older kids who were the same age as the elementary school kids on the play ground.

I think about my big kids who asked me where the kids with Down Syndrome are in their school. How can they not think something is wrong with Anna if she's not allowed in the classes with other kids.

I think about Anna and how much she learns being around typical kids. She learned to climb at the day care. She started potty training because the other kids were doing it at the day care.

To be included and loved, that's what we want for our kids, not separated from the rest of the world like there is something wrong with them.

This is Anna. She is perfect just the way she is.

Monday, September 5, 2016

We have had a lot of changes in our household.

We've moved back to the wet side of the mountains. Big N is in middle school. Little N is in her final year of elementary school. Big A is a big A. Yes, since I haven't been posting a lot of blog updates there has been a little A.

So, to say things are moving forward is the understatement.

I've taken a hiatus from work to care for Big A and little A. I've done some consulting now that she is healthier. That's been a nice change of pace.

Sunday, January 18, 2015

Jai's Chicken and brown rice soup Soup

I made this one up a while ago and have made it many times. It took Jai asking for the recipe to remind me to write it down.

So, I'm calling this one Jai's Chicken and brown rice soup.
  • 4 frozen chicken breasts
  • 5 carrots, peeled and diced
  • 4 celery sticks, diced
  • 1 1/2 onions, diced
  • 1/2 a bunch of kale, cleaned, hard veins/stems removed, finely chopped
  • 2 1/2 teaspoons cumin
  • 2 1/2 teaspoons coriander
  • 1 teaspoon salt
  • 1 teaspoon pepper (add more later, sometimes I'll use white pepper to change up the flavor)
  • dash of hot sauce (or more!)
  • 32 oz box of low-sodium chicken broth
  • 2 cups cooked brown rice

Put everything into the crock pot except the hot sauce and brown rice. If the contents are not covered by the chicken broth, add more or a little water to make up the difference.

Cook on low for 8-10 hours (or overnight if you're taking it somewhere). If you need to cook faster, cook it on high and perhaps use defrosted chicken.

About an hour before serving (or packaging), pull out the chicken onto a plate and shred with two forks. The meat should just fall apart. Add the chicken back to the crock, add the brown rice and the hot sauce to taste. Taste test at this point to make sure your spices are good. Put the lid on and let the crock pot work it's magic.

This is great with a big salad or a crusty slice of bread.

Variations I've done include adding parsnips with the carrots, and/or spinach instead of kale. The spinach doesn't hold up to the crock pot as well as the kale does. I might try adding spinach later in the cooking process if I did that, again.

Wednesday, June 12, 2013

Chocolate Oatmeal

I am on an oatmeal kick. Of course, there is only so many days in a row that you can eat oatmeal as I previously knew how to cook it. During the first month of baby A's stay in the hospital, I enjoyed a bowl most mornings from the hospital cafeteria. After that first month, I was oatmeal-ed out and the Starbucks baristas at the River entrance began to know me by name, drink and cinnamon morning bun.

While we were in the hospital, our neighbor from the Shoreline house brought us food, snacks and chocolate. She mentioned that I needed some chocolate. Yes, chocolate, the thing that makes so many things better.

Once we got home, I had to put an end to the morning buns from Starbucks. The maternity pants I had been wearing for months were starting to get tight.

With that, chocolate oatmeal was born. I waited until we got home, but the idea was definitely implanted during the early part of baby A's stay by the dark chocolate bars from our neighbor.

You can feel good about this bowl of oatmeal. There is Oatmeal to fill you up, almond milk for the health conscience and coconut oil for your brain. AND, there is, of course, that chocolate that makes it feel so bad for you.

A single serving of Chocolate Oatmeal
1/2 cup of Oats
1/2 cup of almond milk (or regular 2% dairy milk)
3/4 cup of water
1 Tablespoon coconut oil
1 Tablespoon brown sugar
2 teaspoons cocoa powder
1 cap full of vanilla extract (1/4-1/2 teaspoon)
dash of kosher salt
Slivered almonds

Add everything to a sauce pan on medium heat except the almonds. Bring to a boil and stir, cooking for 2-5 minutes.

Remove the pan from the heat and cover the oatmeal. Let stand for 5 minutes.

Top with the slivered almonds and enjoy!

Wednesday, May 29, 2013

Baby A is home

Tomorrow will be one week home!

Each day gets easier to be home, but there still is so many things we are working out.

I've been journaling throughout her stay at the hospital on Caring Bridge.

3 months old and finally home!

Sunday, March 31, 2013

Welcome Baby A

I haven't been posting much lately, but in all reality, I haven't been ready to talk about everything that has happened over the last 6 weeks on such a public forum.

Baby A arrived in a beautiful and super fast home birth. We welcomed her into our home and everything looked great. She nursed within minutes of being born and then again before the midwives left.

Baby A then proceeded to give us a scare. She was admitted to Children's hospital about 3 days after she was born. After talking to her pediatrician, this was something so unexpected that no matter where she was born, she would have been home when everything got worse for her. We are happy to have had some time with her at home and look forward to having her home, again, when she is ready.

I've posted some information on a caring bridge site. I think I needed to be a little more private while I processed what she was going through.

The site is here:Baby A's caring bridge site.